Loss 9/101: Loss of skin: Assya Shabir

#009. What is it like to live with the loss of skin every day? Skin that is so fragile the slightest bump will make it tear and blister.This is The Silent Why, a podcast on a mission to open up conversations around loss and grief and to see if hope can be found in 101 different types of loss.Loss #9 of 101: Loss of skinAssya Shabir is in physical pain, day and night. She lives with a disorder called severe Junctional Epidermolysis Bullosa, also known as E.B., or Butterfly Skin. A couple of we...